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Patient journeys: A tool to help patients with rare endocrine ...Endo-ERN

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What are Patient Journeys (PJ), its methodology, added value and clinical application Matt Bolz-Johnson, Health & Network Advisor, EURODIS Lenja Wiehe, Patient ...

Eurordis CEF Workshop October reportRett Syndrome Europe

www.rettsyndrome.eu

— An Update on ERN and ePAGS was given by Lenja Wiehe (Eurordis) who explained that all data processed in hospitals are not transferred into ERNs ...

a preliminary set of measures to evaluate patient engagement ...

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Conceived and designed the analysis: Lenja Wiehe, Anne-Laure Aslanian and Ines Hernando ... Wrote the paper: Diana Marinello, Silvia Aguilera, Lenja Wiehe, ... › ...

Shelter Coordination Group Contact List: Gregg Mcdonald ...Scribd

id.scribd.com

93 WHO Lenja Wiehe Intern 94 World Bank Rinsan Tobing Disaster Officer 95 World Vision Indonesia Alfred Anakotta HEA Officer - Java ...

Tätigkeitsbericht Nephie e.V Nephie e.V.

www.nephie.de

— ... in das. System der ERNs, Lenja Wiehe/EURORDIS; Veranstalter ACHSE e.V. www.achse-online.de. Worpswede, Vorstand Nephie e.V..

All-ePAG meeting, Nov 2022ERN EURO-NMD

ern-euro-nmd.eu

Moderator: Lenja Wiehe, EURORDIS (TBC). > Click here to join the meeting. WED 16 NOV LET'S HAVE A CHAT ON … Grab a coffee and sit with one of ...

April 2022PHA Europe

www.phaeurope.org

2022 — Lenja Wiehe. Patient. Engagement. Senior. Manager. Healthcare – ERN & Healthcare / European. Patient Advocacy Groups, EURORDIS. BARCELONA, SPAIN.

Patient Advisory Board Workshop Dec 8th – Budapest

www.assonoonan.fr

Lenja Wiehe. Patient Engagement Senior Manager,. ERN and Healthcare . Matt Johnson. ERN & Healthcare Advisor. › uploads ›

Wednesday 20 September ERN GUARD-Heart

guardheart.ern-net.eu

— Lenja Wiehe, the representative of EURORDIS (a non- governmental alliance of patient advocacy groups that represent 761 rare disease patient ... › sites › › E...

A tool to help patients with rare endocrine diseases - YouTubeYouTube · Endo-ERN110+ Aufrufe · vor 11 Monaten

www.youtube.com

... Lenja Wiehe, Patient Engagement Senior Manager, EURODIS PREMs/PROMs and PJs in acromegaly Susan M Webb, IIB-Sant Pau, Research Center for ...

Student Internship List | PHIN Newsletter

thephinnewsletter.wordpress.com

Published on February 20th This month we saw the M2s jet off far and wide to start their internships. This is an important part of the MPH program and...

Patient engagement in healthcare: a preliminary set of ...OAE Publishing

www.oaepublish.com

... Lenja Wiehe, Anne-Laure Aslanian, Ines Hernando Martin "Patient engagement in healthcare: a preliminary set of measures to evaluate patient ...

Everything You Wanted to Know About VASCERN Days 2022

vascern.eu

— On the second day of the seminar, Lenja Wiehe and Rita Francisco from EURORDIS joined the patient advocates at the VASCERN ePAG meeting ... › everything-you...

WebinarsEndo-ERN

endo-ern.eu

Susan M Webb, Matt Bolz-Johnson, Lenja Wiehe, Jette Kristensen, Anna Nordenström and Diana Vitali. MTG4 · MEN-1 – a joint webinar from ESE, Endo-ERN and ESPE ...

ERN ReCONNET KICK-OFF MEETING REPORTERN ReCONNET

reconnet.ern-net.eu

— ... Lenja Wiehe form EURORDIS-Rare Disease Europe continued with a presentation on “PATIENTS INVOLVEMENT IN THE ERNS”. The European Commission ...

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